Five years ago, a curator, filmmaker and scientist set out on a collaborative journey to discover what it would be like to see the world through the eyes of a child with a rare disease, Joubert’s Syndrome.
The result, Mapping Perception, is an art project spanning a feature film, an art installation, CD-ROM and publication. But, the creators say, over the years of investigation, creation and production, they soon realised the limitations of art, and of science, in exploring one individual’s perception.